Win-It Wednesday: Do you recognize this place at Gillette? Leave a comment with your best guess and we’ll choose someone at random to receive an “I Love Gillette” t-shirt! Remember, you must comment below for a chance to win!

An Airplane Trip With Your Special Needs Child?
An Airplane Trip With Your Special Needs Child?
By Shalleen Nelson
I did it, and so can you! I am a proud mom to 5-year-old Sebastian, a longtime Gillette patient, who was born with Down syndrome and neurological issues. I’m also mother to Francesco, Sebastian’s typically-developing twin brother.
Sebastian loves to discover new places! Fortunately for our family, travel has become a smooth process with practice and preparation. Have a question for me? Please leave it in the “Comments” section below! I’ll continue to share advice on vacationing, from camping trips to hotel stays, in the months to come. I’ll begin by sharing my “Top Tips” on fun, and safe, airplane travel.
Before Boarding
- Check-in online and print your boarding passes from home.
- Request to change your seating arrangements if necessary. You can do this before security at the check-in counter, or by speaking with an agent at the gate.
- Alert the gate agent of your special needs, and ask to be boarded first.
- Take direct flights (no layovers!) if possible, and aim for 3 hours maximum air time.
At Security
- There is always a handicap security line – just ask!
- Did you know children can leave their shoes on when going through security?
- Children in wheelchairs can often remain in their chair, so be sure to ask.
- You may bring more than the allotted carry-on fluid if it’s clearly labeled as a liquid medication for your child. Consider a physician’s note, in case of questions.
In the Air
- Keep drinks and snacks handy to help with cabin pressure changes during take-off and landing. Swallowing and chewing will help ease eardrum pain.
- Bring several options for entertainment – books, music, or a portable DVD with headphones – to keep your child busy.
Above all, remember to RELAX, take a deep breath, and remind yourself that you’re in no rush. You’ll be at your destination before you know it!
Meet Jessica Brunotte, Nurse at Gillette!
Q. What are some of your hobbies outside work?
A. Gardening, Reading, Playing Volleyball
Q. Do you have any children or pets?
A. 3 kids Matt (14 y.o.) Jada (13 y.o) and Sean (9 y.o.). 2 dogs Nico and Jax
Q. What is your favorite book and food?
A. Fettuccine Alfredo
Q. If you could travel anywhere where would you go?
A. Ireland
Q. What was your favorite subject in school?
A. Science
Q. What is your favorite type of music or band?
A. U2
Q. What do you enjoy most about your job at Gillette?
A. Getting to know my patients and their families
“The New Normal” Our Lives Have Become
Today is Mother’s Day. A day when millions of moms wake up and feel grateful for their children, whether they are normally-developing or living with a disability. Yesterday, we shared one mother’s essay, Welcome to Holland, describing the experience of parenting a special needs child. Today, we’re sharing the perspective of a mom whose journey to Holland happened in one terrifying and life-altering instant.
“When my son was born I counted fingers and toes, and was happy to get the all clear from his doctor,” recalls Robbi, mom to 10-year-old Ian. Then, one summer day in 2009, Robbi’s world turned upside down. While walking home from swimming lessons with his older brother, Ian was struck by a car. “My sweet, gentle boy was lying in a hospital bed with a traumatic brain injury, says Robbi. “We were told that he would remain in a vegetative state for the rest of his life. I felt like Alice, falling down the rabbit hole.”
When Ian came to Gillette for rehabilitation, Robbi describes her state of hopelessness beginning to shift. “In my complete darkness, Ian’s nurse, Tiffany, walks in with a huge smile, sits next to me as if we were old friends and begins telling me about Ian’s new schedule which included meals, baths, school and therapy. I truly felt as if someone had turned on a light and opened the door.”
Soon, Ian’s recovery defied expectations. “He quickly learned to swallow, and soon he could talk. He was coming back to me,” says Robbi. Today, she says it would be difficult for a stranger to tell he nearly died from a severe brain injury.
“Ian still struggles with some lingering deficits and needs continued therapy,” recognizes Robbi. “Gillette gave me my son back, and gave me the tools to deal with the new normal that our lives have become.”
Welcome to Holland
Mothers of children with disabilities are sometimes asked, by parents of normally-developing children, what parenting is like. As we continue celebrating special needs moms this Mother’s Day weekend, we’re sharing one mother’s personal essay on her journey to Holland. As you reflect and share, we encourage you to also join Gillette’s campaign to Cure Pity by pledging to make the world a more hopeful, welcoming place special needs kids.
Welcome to Holland
I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……
When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”
“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”
But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.
The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”
And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.
But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.
(c1987 by Emily Perl Kingsley. All rights reserved)
“They Tell Me ‘Can’t’ and I Hear ‘I Dare You’”
“They Tell Me ‘Can’t’ and I Hear ‘I Dare You’”
What does Mother’s Day mean? For many, it’s a thoughtful card, a bouquet of flowers, or a celebratory brunch. But for mothers of children with disabilities, it’s an opportunity to reflect on a one-of-a-kind parenting journey. It’s a journey fraught with challenges, to be sure—but more importantly, one filled with extraordinary rewards and small miracles. As we share Mother’s Day stories in the days ahead, we invite you to share your own—and to sign our Pledge to Cure Pity at www.curepity.org. By signing, you’ll join our movement to show the world all that children with disabilities can achieve.
“Each day brings struggles but also laughter, smiles, and always miracles……always,” says Autumn, mother to 7-year-old Kevin, who was born with a severe form of spina bifida. “In the early years, my life was filled with doctors while other moms were at Mommy & Me groups. They were waiting for their baby’s first word, while I was waiting for mine to look me in the eye or sit up. These things came in time, and each was a miracle,” says Autumn.
Soon, Autumn discovered that Kevin had inherited her love of music and rhythm. “His first words were not spoken, they were sung. His love of music has opened a portion of his brain that should technically not be functioning. Am I proud? Yes. Am I surprised? No. For everything he can’t do, look at what he can.”
Autumn says she doesn’t yet know what Kevin’s purpose in this world will be—but she knows how much he’s irrevocably changed her own world. “My role is filled with a clarity and purpose that most moms could only hope for,” she says. “Special needs moms aren’t rock stars, we are rocks. People use the term ‘limitations’ and we hear ‘limitless’. They tell me ‘can’t’ and I hear ‘I dare you.’”
Meet Megan Cosgrove, Nurse at Gillette!
Q. What are some of your hobbies outside work?
A. I’m pretty boring, reading, gardening, I love to fish, playing with the grandkids and Twins games (well maybe not so much this year!)
Q. Do you have any children or pets?
A. I have 3 adults. 2 boys and a girl, and 2 grandkids. A girl and a boy.
Q. If you could choose a superpower, what would it be?
A. Xray vision. It would make my job in orthopaedics much faster!
Q. What is your favorite book and food?
A. I love Mexican food. I couldn’t possibly pick one book.
Q. If you could travel anywhere where would you go?
A. I would LOVE to go to Hawaii. I’m too afraid to leave the country.
Q. What was your favorite subject in school?
A. Math
Q. What is your favorite type of music or band?
A. Old R&B and funk
Q. Who did you admire as a child?
A. Grace Kelly and Barbara Streisand…the opposite of me.
Q. Do you have a favorite story or memory from Gillette?
A. Taking care of and getting close to the family of a girl who was here for a month in a hip spica. She now works at Gillette and we are great friends.
Q. What do you enjoy most about your job at Gillette?
A. Watching the kids grow up and being a positive influence in their lives. Seeing what amazing work our Dr. do! And of course all of the great coworkers I have known over the years.
Girls and Sports Related Concussions
In sports played by both sexes, girls are reporting nearly twice as many concussions. This story was aired on NBC Today this morning and Dr. Angela Sinner, pediatric rehabilitation physician at Gillette Children’s Specialty Healthcare shares her comments.
Watch the video here: Girls and Sports Related Concussions
Dr. Angela Sinner’s comment: This story shows real female student/athletes and their challenges with concussions. Two of the girls illustrate atypical, though real, outcomes following concussions. They experience long-term effects: nausea, headaches, light sensitivity, and challenges at school.
In the neurotrauma clinic at Gillette, we work hard to help patients heal properly from their concussions through rest after the injury and support as needed. Those are the first steps in attempting to prevent the long-term effects of a concussion and to avoid repeated concussions. We were told that one of these girls sat out for an extended period–the rest of her soccer season–after her first concussion.
Across the country, researchers have work to do to better understand female athletes and their risk of concussion, so we can ensure we manage their conditions optimally.
Meet Sarah Gutknecht, Pediatric Nurse Practitioner at Gillette!
Whether they’re brightening a hospitalized child’s day, calming an anxious family before a surgery or helping to navigate a busy outpatient clinic appointment, nurses play an essential role in the work we do at Gillette.
It’s National Nurse Week and at Gillette we are thankful for all nurses do. We will be featuring a handful of nurses this week for you to meet. Today, meet Sarah Gutknecht, a pediatric nurse practitioner who was named 2011′s Distinguished Nurse of the Year by the March of Dime’s Nurse of the Year Awards.
Q. What are some of your hobbies outside work?
A. Volunteering (international medical missions, plus I sit on two national boards (Pediatric Nursing Certification Board, and the National Association of Pediatric Nurse Practitioners), travel, photography, music, sports: biking, skating, skiing (okay, anything outside!)
Q. As a child, which superhero did you admire? Or, if you could choose a superpower, what would it be?
A. I am intrigued by Harry Potter’s invisibility cloak, I would love to have Dash’s speed from the Incredibles, but clearly the most beneficial skill would be the power to heal.
Q. What is your favorite book and food?
A. My favorite authors are Louise Erdrich and Barbara Kingsolve
B. I’m a foodie: I love all kinds of food. I enjoy going to the Farmer’s Market on the weekends. I’m no Andrew Zimmern, but I’ve had my share of unusual meals during my travels. We’re so lucky in the Twin Cities to have a plethora of amazing restaurants, from a locavore perspective to fabulous Southeast Asian restaurants. Vietnamese food is fabulous, for example, there is nothing like a good bowl of pho (noodle soup) on a rainy day.
Q. If you could travel anywhere where would you go?
A. I’m lucky, I have been to all seven continents, but there are still many places I desire to travel to, e.g., hike up Mount Kilimanjaro, swim with whale sharks in the South Pacific, and search for Blue Penguins in New Zealand.
Q. What was your favorite subject in school?
A. I love science, anthropology, and the arts.
Q. What is your favorite type of music or band?
A. I have eclectic musical interests, and I enjoy listening to our local public radio station, 89.3 The Current.
Q. Who did you admire as a child?
A. My parents, who always seemed bigger than life. In fact, they still do. I think parenting is one of the toughest roles in life, and to be able to raise children that are good citizens is a huge success. I admire all parents.
Q. Do you have a favorite story or memory from Gillette?
A. Too many to mention here. I enjoy caring for my patients and their families, and am honored they allow me to participate in their lives.
Q. What do you enjoy most about your job at Gillette?
A. Our kids and their families, my colleagues, an intra-disciplinary approach, and Gillette’s mission. Plus, Gillette Children’s Specialty Healthcare not only delivers great patient care, but also has a commitment to education and research. Gillette recognizes the important role that nurses play in achieving the best possible patient outcomes, reflected in its American Nurses Credential Center Magnet Designation.
Your Picky Eater Questions, Answered!
Last week, we asked you to submit questions about your child’s mealtime challenges for Tonya Rich, OT, feeding specialist at Gillette. Today, we’re sharing Tonya’s responses and advice. Have a question we didn’t answer? Leave a comment here. Or, contact Gillette’s Feeding Clinic directly. By working to resolve feeding issues that children may struggle with, our clinic’s goal is to make mealtimes a positive experience for kids and their parents.
Q. My 8 y.o. rarely eats anything other than rice noodles, rice or tortilla shell with sour cream and cheese for dinner. If the noodles aren’t over cooked, or she feels a crunchy (or what she perceives to be crunchy) noodle, she spits it out and leaves the table crying. Same thing with any crunchy part she might find on a soft, flour tortilla shell. She’s allergic to eggs, pork, chicken, turkey, strawberries and cashews. Is there something that could help her deal with these texture aversions?
A. It sounds like you’ve really worked hard to manage your daughter’s allergies while continuing to expand her food choices. You might want to think about trying a new food at snack time. That would allow you to maintain a more positive mealtime experience. Depending on how many flavors your daughter is able to tolerate, you might want to start by expanding the flavors that she’ll eat (noodles with a new sauce, cheese, or new red sauce).
Q. My 9 year old autistic boy is all about texture and color. He had a bad experience as a preschooler. They were righting letters with shaving cream and wont eat anything like it, mashed potatoes, cool whip. Wont eat lunch meat. No veggies. He only likes chicken nuggets, p.b. & jelly sands, most fruit (not strawberries or watermelon tho)any suggestions besides bribery?
A. Oftentimes we will start with what the child is most comfortable and then build towards stretching the child to new foods/experiences. You might want to start with changing the safe and less emotional parts of the meal such as the plates, tablecloths, utensils or having music on during the meal. It’s the same food but the environment has changed slightly. As your child is able to tolerate those changes, you can build towards tolerating having less desired foods on the table. I would also encourage safe non-food interactions with having your child look at pictures of food (google images works well) or read books about food/eating.
Q. My daughter who has Rett, has a hard time with pooling food in her mouth before swallowing, if she swallows it at all. We usually try mushy foods, or pasta, but have been trying pureed food too. Feeding time is for sure the most streeful time at our house.
A. Our therapists are able to help child learn how to manage food safely in their mouth. This could be by alternating a bite of pasta with a drink or some puree or placing the bite of food on the side of the mouth can be helpful for a child who is learning to eat as well.
Q. Five year old Naomi will eat noodles, tortillas and PB and honey, chicken nuggets with ketchup or honey mac and cheese and the occasional red sauce with pizza or spaghetti. Juice is the only was we can get any fruits or veggies. We thought she may have some allergies – but nope – just picky! She’s BASICALLY healthy weight wise and energy wise…but i long to give her a good salad or piece of fruit…..then again, not many kids dive on those I guess. In contrast her 2 year old sister eats Nori (seaweed) and hummus and peppers and oranges like she’s eating her last meal.
A. Family meals are one way to allow children to be exposed to a variety of sights, smells, and foods. Related to family meals, one strategy that can be helpful is encouraging children to participate in preparing meals and exploring food. This helps families to redefine what they mean when they say “try it” for their child. This could mean “trying it” is your daughter just starts out with looking at the other foods, helping to prepare them, tolerating them at the table or passing the dish to another person in the family. You can build up to her touching the food, having it on her plate, and hopefully steadily move towards her trying a new food.
Q. I’m having trouble getting my almost-two-year-old to eat squishy or wet foods. He is all about the crunchy. I really want him to eat more fruits and vegetables that aren’t pureed in a squeezable pouch. He has recently decided that cooked pasta is OK, so I have hope. Fresh or canned fruit is just out of the question, though.
A. It’s great that he will take the pureed fruits and vegetables! Now we can build off of that…Veggie sticks can be helpful for kids who like the crunchy. Sometimes engaging the child in making “food faces” on their plate with over-steamed vegetables can encourage a child to try a new food. That way they can touch a new food but it’s not too squishy or wet. Keep encouraging your child in play to explore wet/messy play (i.e. water table, in the bathtub, pudding painting, or finger painting).
Q. Any advice for parents whose kiddos overload on their preferred foods and then won’t eat them again for long periods of time?
A. Slow and steady wins the race. Keep offering a wide variety of foods. Children often need a significant number of exposures to foods and this can be done in a way to minimize anxiety (putting foods in the grocery cart, helping with cooking, helping with menu planning, all the way to using a divided plate.







